{"id":143662,"date":"2019-08-12T02:00:41","date_gmt":"2019-08-12T09:00:41","guid":{"rendered":"https:\/\/fabfitfun.com\/magazine\/?p=143662"},"modified":"2019-07-24T18:38:14","modified_gmt":"2019-07-25T01:38:14","slug":"city-of-hope-krissy-kobata","status":"publish","type":"post","link":"https:\/\/fabfitfun.com\/magazine\/city-of-hope-krissy-kobata\/","title":{"rendered":"The Truth About Finding a Donor Match as a Mixed Race Patient"},"content":{"rendered":"<h6>FALL 2019 BOX PARTNER<\/h6>\n<p><em>Here at FabFitFun, we partner with a new charity every season to bring awareness to amazing organizations and nonprofits that are making the world a better place.\u00a0<\/em><em>This season, we&#8217;re incredibly honored to join forces with <a href=\"https:\/\/www.cityofhope.org\/\" target=\"_blank\" rel=\"noopener\">City of Hope<\/a>, an organization that\u2019s dedicated to finding a cure for cancer and other deadly illnesses while positively impacting patients\u2019 lives during and after treatment.<\/em><\/p>\n<p><em>Below, Krissy Kobata shares how City of Hope supported her throughout her battle with myelodysplastic syndrome.<\/em><\/p>\n<p><img loading=\"lazy\" itemprop=\"image\" class=\"wp-image-143676 aligncenter\" src=\"https:\/\/fabfitfun.com\/magazine\/wp-content\/uploads\/2019\/07\/krissy-kobata-in-hospital.jpg\" alt=\"\" width=\"500\" height=\"667\" srcset=\"https:\/\/static.fabfitfun.com\/magazine\/wp-content\/uploads\/2019\/07\/19161924\/krissy-kobata-in-hospital.jpg 525w, https:\/\/static.fabfitfun.com\/magazine\/wp-content\/uploads\/2019\/07\/19161924\/krissy-kobata-in-hospital-167x222.jpg 167w, https:\/\/static.fabfitfun.com\/magazine\/wp-content\/uploads\/2019\/07\/19161924\/krissy-kobata-in-hospital-173x230.jpg 173w, https:\/\/static.fabfitfun.com\/magazine\/wp-content\/uploads\/2019\/07\/19161924\/krissy-kobata-in-hospital-458x610.jpg 458w\" sizes=\"(max-width: 500px) 100vw, 500px\" \/><\/p>\n<p>Krissy Kobata knows what it is like to wait.<\/p>\n<p>For more than 10 years, she waited for a bone marrow donor while inside her body simmered a blood disease called <a href=\"https:\/\/www.cityofhope.org\/clinical-program\/myelodysplastic-syndrome\" target=\"_blank\" rel=\"noopener\">myelodysplastic syndrome<\/a>.<\/p>\n<p>As Kobata grappled with her condition, she saw friends and acquaintances in similar situations \u2013 people whose mixed heritage was a barrier to transplant \u2013 do the same. Sometimes in vain.<\/p>\n<p>\u201cEmotionally, I am a ticking time bomb,\u201d said Kobata, whose father is Japanese and mother is Caucasian, in an <a href=\"https:\/\/www.glamour.com\/story\/meet-krissy-kobata-you-could-save-her-life\" target=\"_blank\" rel=\"noopener\">interview with <em>Glamour<\/em><\/a> in 2012. \u201cWithout a transplant, this disease will eventually kill me.\u201d<\/p>\n<p>Finally, Kobata\u2019s care team at City of Hope, which had been monitoring her condition, said she could not wait any longer. She needed a match right away.<\/p>\n<p>\u201cI was getting sicker and sicker,\u201d said Kobata, 35. \u201cAnd by that time, I was really scared.\u201d<\/p>\n<p>For minorities and mixed-race patients diagnosed with life-threatening blood cancers, bone marrow transplants (<a href=\"https:\/\/www.cityofhope.org\/tests-and-treatments\/bone-marrow-and-blood-stem-cell-transplants\" target=\"_blank\" rel=\"noopener\">BMT<\/a>) offer a second chance and may be their best hope for a cure. But these patients face an added layer of difficulty when seeking bone marrow matches either within their extended family or from an unrelated donor on the <a href=\"https:\/\/www.cityofhope.org\/patients\/departments-and-services\/michael-amini-transfusion-medicine-center\/blood-donor-center\/national-marrow-donor-program-at-city-of-hope\" target=\"_blank\" rel=\"noopener\">Be The Match<\/a> registry.<\/p>\n<p>Only 4% of donors on the registry are of mixed-race background.<\/p>\n<p>\u201cBone marrow matches get more complicated the more racially mixed we are and makes things much more difficult for patients,\u201d says Jill Kendall-Erb, program director for the Be the Match <a href=\"https:\/\/www.cityofhope.org\/patients\/departments-and-services\/michael-amini-transfusion-medicine-center\/blood-donor-center\/national-marrow-donor-program-at-city-of-hope\" target=\"_blank\" rel=\"noopener\">program at City of Hope<\/a>. \u201cIt\u2019s a very big deal because it means you have a donor base that is huge and vast and wide for Caucasian patients, but not for minority patients.\u201d<\/p>\n<p>The best matches tend to come from immediate family members. A patient has about a 25% chance of matching a sibling. But even in large families, there is no guarantee.<\/p>\n<p>To continue reading about Kobata&#8217;s journey, head over to <a href=\"https:\/\/fff.me\/kobata\" target=\"_blank\" rel=\"noopener\">fff.me\/kobata<\/a>.<\/p>\n<p>xx, The FabFitFun Team<\/p>\n<p>For more inspiring stories, read about\u00a0<a href=\"https:\/\/fabfitfun.com\/magazine\/city-of-hope-stacy-kimmel\/\" target=\"_blank\" rel=\"noopener\">Stacy Kimmel<\/a>, a five-time cancer survivor, and\u00a0<a href=\"https:\/\/fabfitfun.com\/magazine\/city-of-hope-donna-mcnutt\/\" target=\"_blank\" rel=\"noopener\">Donna Mcnutt<\/a>&#8216;s testimonial on life <em>after<\/em> cancer.<\/p>\n","protected":false},"excerpt":"FALL 2019 BOX PARTNER Here at FabFitFun, we partner with a new charity every season ...","author":272854,"featured_media":143663,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":[],"categories":[201],"tags":[533],"thumbnail_url":"https:\/\/static.fabfitfun.com\/magazine\/wp-content\/uploads\/2019\/07\/19124122\/krissy-kobata-hand-on-hip.jpg","thumbnail_url_middle_card":"https:\/\/static.fabfitfun.com\/magazine\/wp-content\/uploads\/2019\/07\/19124122\/krissy-kobata-hand-on-hip-386x200.jpg","formated_date":"August 12, 2019","category_name":"Members Only","category_icon":"https:\/\/static.fabfitfun.com\/magazine\/wp-content\/uploads\/2021\/03\/11113301\/iSiu0EDM.png","author_name":"","trending":false,"sponsored":false,"random_color":"#8e15c1","_links":{"self":[{"href":"https:\/\/fabfitfun.com\/magazine\/wp-json\/wp\/v2\/posts\/143662"}],"collection":[{"href":"https:\/\/fabfitfun.com\/magazine\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/fabfitfun.com\/magazine\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/fabfitfun.com\/magazine\/wp-json\/wp\/v2\/users\/272854"}],"replies":[{"embeddable":true,"href":"https:\/\/fabfitfun.com\/magazine\/wp-json\/wp\/v2\/comments?post=143662"}],"version-history":[{"count":0,"href":"https:\/\/fabfitfun.com\/magazine\/wp-json\/wp\/v2\/posts\/143662\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/fabfitfun.com\/magazine\/wp-json\/wp\/v2\/media\/143663"}],"wp:attachment":[{"href":"https:\/\/fabfitfun.com\/magazine\/wp-json\/wp\/v2\/media?parent=143662"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/fabfitfun.com\/magazine\/wp-json\/wp\/v2\/categories?post=143662"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/fabfitfun.com\/magazine\/wp-json\/wp\/v2\/tags?post=143662"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}